A resolution designating November 28, 2013, as "National Holoprosencephaly Awareness Day" to increase awareness and education of the disorder.
Bill journey · stage 2 of 5
Under committee review
What it doesSummary introduced in senate (May 22, 2013)
Expresses support for the designation of November 28, 2013, as National Holoprosencephaly Awareness Day.
Urges federal agencies to: (1) continue supporting research to better understand the causes of holoprosencephaly (HPE); (2) provide better counseling to families with the genetic forms of HPE; and (3) develop new ways to treat, and potentially prevent, HPE.
Calls on the people of the United States, interested groups, and affected persons to promote awareness of HPE and to take an active role in the fight to end its devastating effects.
What just happenedMay 22, 2013
Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767)
Who’s behind it
- Introduced in SenateMay 22, 2013
- May 22, 2013IntroReferral
Referred to the Committee on Health, Education, Labor, and Pensions. (text of measure as introduced: CR S3767)
- May 22, 2013IntroReferralB00100
Sponsor introductory remarks on measure. (CR S3767)
- May 22, 2013IntroReferral10000
Introduced in Senate