Ask AI
H.R. 2202Became Law

National Bone Marrow Registry Reauthorization Act of 1998

National Bone Marrow Registry Reauthorization Act of 1998 - Amends the Public Health Service Act to set forth the purpose of the National Bone Marrow Donor Registry and impose requirements regarding its board of directors.

Sets forth program functions, including regarding collection, analysis, and publication of data on donor searches.

Mandates implementation of a plan to effectuate efficiencies between the Registry and donor centers.

Requires the Registry to: (1) recruit donors; (2) give priority to recruiting populations underrepresented among potential donors; and (3) consider racial and ethnic minority groups underrepresented.

Requires the Registry to maintain an office of patient advocacy meeting specified requirements, including providing case management. Allows the office to provide information on the process of receiving a bone marrow transplant, including the posttransplant process.

Mandates maintenance of a scientific registry regarding patients who have received marrow from an unrelated donor.

Authorizes appropriations to carry out the Registry provisions.

Mandates a study of the Registry and report to the Congress by the Comptroller General regarding specified aspects of the Registry.

Directs the Secretary of Health and Human Services, by a specified period after the effective date of this Act, to ensure that the office of patient advocacy (mandated by this Act) is in compliance with certain requirements.

Became Public Law No: 105-196.

Rep. Young, C. W. Bill [R-FL-10](R-FL)Sponsor
218 cosponsors129 D89 R
218cosponsors2committees31actions
  1. PresidentE40000

    Became Public Law No: 105-196.

  2. BecameLaw36000

    Became Public Law No: 105-196.

  3. PresidentE30000

    Signed by President.

  4. BecameLaw36000

    Signed by President.

  5. FloorE20000

    Presented to President.

  6. President28000

    Presented to President.

  7. Floor

    Message on Senate action sent to the House.

  8. Floor

    Passed Senate without amendment by Unanimous Consent.

  9. Floor17000

    Passed/agreed to in Senate: Passed Senate without amendment by Unanimous Consent.

  10. Discharge

    Senate Committee on Labor and Human Resources discharged by Unanimous Consent. (consideration: CR S7037)

    Health, Education, Labor, and Pensions Committee
  11. Committee14500

    Senate Committee on Labor and Human Resources discharged by Unanimous Consent.(consideration: CR S7037)

    Health, Education, Labor, and Pensions Committee
  12. IntroReferral

    Received in the Senate and read twice and referred to the Committee on Labor and Human Resources.

    Health, Education, Labor, and Pensions Committee
  13. IntroReferralB00100

    Sponsor introductory remarks on measure. (CR E914-915)

  14. FloorH38310

    Motion to reconsider laid on the table Agreed to without objection.

  15. FloorH37300

    On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.

  16. Floor8000

    Passed/agreed to in House: On motion to suspend the rules and pass the bill, as amended Agreed to by voice vote.

  17. FloorH8D000

    DEBATE - The House proceeded with forty minutes of debate.

  18. FloorH30000

    Considered under suspension of the rules. (consideration: CR H3425-3429)

  19. FloorH30300

    Mr. Bilirakis moved to suspend the rules and pass the bill, as amended.

  20. CalendarsH12410

    Placed on the Union Calendar, Calendar No. 305.

  21. CommitteeH12200

    Reported (Amended) by the Committee on Commerce. H. Rept. 105-538.

    Energy and Commerce Committee
  22. Committee5000

    Reported (Amended) by the Committee on Commerce. H. Rept. 105-538.

    Energy and Commerce Committee
  23. CommitteeH19000

    Ordered to be Reported (Amended) by Voice Vote.

    Energy and Commerce Committee
  24. CommitteeH15000-B

    Committee Consideration and Mark-up Session Held.

    Energy and Commerce Committee
  25. CommitteeH23000

    Forwarded by Subcommittee to Full Committee (Amended) by Voice Vote.

    Health and Environment Subcommittee
  26. CommitteeH22000

    Subcommittee Consideration and Mark-up Session Held.

    Health and Environment Subcommittee
  27. CommitteeH26000

    Joint Hearings Held by the Subcommittee on Health and Environment and by the Senate Subcommittee on Public Health and Safety.

    Health and Environment Subcommittee
  28. CommitteeH11000

    Referred to the Subcommittee on Health and Environment.

    Health and Environment Subcommittee
  29. IntroReferralH11100

    Referred to the House Committee on Commerce.

    Energy and Commerce Committee
  30. IntroReferralIntro-H

    Introduced in House

  31. IntroReferral1000

    Introduced in House

May 19, 199836

National Bone Marrow Registry Reauthorization Act of 1998 - Amends the Public Health Service Act to set forth the purpose of the National Bone Marrow Donor Registry and impose requirements regarding its board of directors.

Sets forth program functions, including regarding collection, analysis, and publication of data on donor searches.

Mandates implementation of a plan to effectuate efficiencies between the Registry and donor centers.

Requires the Registry to: (1) recruit donors; (2) give priority to recruiting populations underrepresented among potential donors; and (3) consider racial and ethnic minority groups underrepresented.

Requires the Registry to maintain an office of patient advocacy meeting specified requirements, including providing case management. Allows the office to provide information on the process of receiving a bone marrow transplant, including the posttransplant process.

Mandates maintenance of a scientific registry regarding patients who have received marrow from an unrelated donor.

Authorizes appropriations to carry out the Registry provisions.

Mandates a study of the Registry and report to the Congress by the Comptroller General regarding specified aspects of the Registry.

Directs the Secretary of Health and Human Services, by a specified period after the effective date of this Act, to ensure that the office of patient advocacy (mandated by this Act) is in compliance with certain requirements.

Jul 17, 199700

National Marrow Donor Program Reauthorization Act of 1997 - Amends the Public Health Service Act to replace provisions relating to the National Bone Marrow Donor Registry with provisions mandating establishment, by contract, of a program to assist patients needing a blood stem cell transplant in searching for biologically unrelated donor individuals.

Sets forth program functions, including: (1) maintaining one or more donor and one or more recipient registries; (2) educational activities (including donor recruitment and professional and public information); and (3) establishing the Office of Patient Advocacy and Case Management.

Mandates: (1) standards regarding quality, tissue typing, donor informed consent, and patient advocacy; (2) donor selection criteria; (3) stem cell collection and transportation procedures; (4) confidentiality standards; and (5) procedures for integrating participating donor registries and centers. Mandates criminal penalties for confidentiality violations.

Authorizes appropriations.

Mandates a plan to effectuate efficiencies in the relationship between the program and donor centers.