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H.R. 2652

Jonathan Tomal Rare Diseases Public Information Act

Jonathan Tomal Rare Diseases Public Information Act - Amends the Public Health Service Act to establish: (1) the National Rare Diseases Data System for the collection, storage, analysis, retrieval, and dissemination of data from patient populations with rare health conditions; and (2) the National Rare Diseases Information Clearinghouse. Authorizes appropriations.

Referred to the Subcommittee on Health and the Environment.

Rep. Roemer, Tim [D-IN-3](D-IN)Sponsor
1committees5actions7subjects
  1. CommitteeH11000

    Referred to the Subcommittee on Health and the Environment.

    Health and Environment Subcommittee
  2. IntroReferralH11100

    Referred to the House Committee on Energy and Commerce.

    Energy and Commerce Committee
  3. IntroReferralB00100

    Sponsor introductory remarks on measure. (CR E1796-1797)

  4. IntroReferralIntro-H

    Introduced in House

  5. IntroReferral1000

    Introduced in House